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	<title>Menéame: comentarios [2009929]</title>
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	<pubDate>Tue, 10 Sep 2013 17:15:52 +0000</pubDate>
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		<meneame:comment_id>13497482</meneame:comment_id>
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		<meneame:order>2</meneame:order>
		<meneame:user>capitan__nemo</meneame:user>
		<meneame:votes>2</meneame:votes>
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		<meneame:url>https://www.meneame.net/story/sentencia-tsxg-obliga-sergas-tratar-enfermedad-ultra-rara</meneame:url>
		<title>#2 Una sentencia del TSXG obliga al Sergas a tratar una enfermedad ultra-rara</title>
		<link>https://www.meneame.net/story/sentencia-tsxg-obliga-sergas-tratar-enfermedad-ultra-rara/c02#c-2</link>
		<pubDate>Tue, 10 Sep 2013 17:15:52 +0000</pubDate>
		<dc:creator>capitan__nemo</dc:creator>
		<guid>https://www.meneame.net/story/sentencia-tsxg-obliga-sergas-tratar-enfermedad-ultra-rara/c02#c-2</guid>
		<description><![CDATA[<p>Nadie se pregunta<br />
¿por que es tan caro el eculizumab? (el medicamento con el que lo tratan)<br />
<a href="http://en.wikipedia.org/wiki/Eculizumab" title="en.wikipedia.org/wiki/Eculizumab" rel="nofollow">en.wikipedia.org/wiki/Eculizumab</a><br />
<a href="http://en.wikipedia.org/wiki/Alexion_Pharmaceuticals" title="en.wikipedia.org/wiki/Alexion_Pharmaceuticals" rel="nofollow">en.wikipedia.org/wiki/Alexion_Pharmaceuticals</a><br />
(incluso aqui hay un conflicto legal en Belgica en el que acusaron a la empresa de chantaje moral)<br />
<br />
NHS refuses to pay for drug to help ill mum, 31<br />
<a href="http://www.yorkpress.co.uk/news/10156263.NHS_refuses_to_pay_for_drug_to_help_ill_mum__31/?ref=ms" title="www.yorkpress.co.uk/news/10156263.NHS_refuses_to_pay_for_drug_to_help_ill_mum__31/?ref=ms" rel="nofollow">www.yorkpress.co.uk/news/10156263.NHS_refuses_to_pay_for_drug_to_help_</a><br />
<a class="tooltip l:2009929" href="https://www.meneame.net/story/sentencia-tsxg-obliga-sergas-tratar-enfermedad-ultra-rara" rel="nofollow">#0</a> <a class="tooltip c:2009929-1" href="https://www.meneame.net/story/sentencia-tsxg-obliga-sergas-tratar-enfermedad-ultra-rara/c01#c-1" rel="nofollow">#1</a></p><p>&#187;&nbsp;autor: <strong>capitan__nemo</strong></p>]]></description>
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		<meneame:comment_id>13491455</meneame:comment_id>
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		<meneame:user>cadgz</meneame:user>
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		<meneame:url>https://www.meneame.net/story/sentencia-tsxg-obliga-sergas-tratar-enfermedad-ultra-rara</meneame:url>
		<title>#1 Una sentencia del TSXG obliga al Sergas a tratar una enfermedad ultra-rara</title>
		<link>https://www.meneame.net/story/sentencia-tsxg-obliga-sergas-tratar-enfermedad-ultra-rara/c01#c-1</link>
		<pubDate>Mon, 09 Sep 2013 19:03:40 +0000</pubDate>
		<dc:creator>cadgz</dc:creator>
		<guid>https://www.meneame.net/story/sentencia-tsxg-obliga-sergas-tratar-enfermedad-ultra-rara/c01#c-1</guid>
		<description><![CDATA[<p>Para esta gentuza no somos nada, les da igual que muera alguien si se pueden ahorrar 300.000 mil euros al año.<br />
Eso si, si el afectado fuera un alto cargo politico o algún familiar le pondrían dos tratamientos, por si acaso</p><p>&#187;&nbsp;autor: <strong>cadgz</strong></p>]]></description>
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